Countdown: 2 days to Road Trip

We travel differently in Doolie than we did in Gertrude.  In the larger pickup and camper we had more storage.  We hauled tables and chairs, my guitar and bike gear in the back seat of the king cab pickup.  The bikes had bug patrol as they rode up on the front bumper. That’s with the exception of Grepedo, the green periscope torpedo tandem, who always got to ride inside.  That will be changing soon!!  In the camper I hauled my clothes out in a laundry basket and put them away, or not, in the plentiful storage.  In the new rig, our clothing is packed in compression bags before it goes out and we each get two little cupboards to store everything…including toiletries. Doolie fits in the RV  garage. We leave the door to the garage and the big sliding side door of the van open and can freely carry items in and out.  Poor Gertrude (actually poor Carol) had  a step stool and three steps to get to the fox platform and then one more step in to the camper.  Those days are over.

Tonight my brain is rumbling as bad as my stomach.  I have been feeling puny today.  Great, I  know, just before a major road trip. I  just laid low, took a long nap and worked on my talks.

I am able to travel.  I can walk, sleep on beds other than my own, eat just about any food I like.  I  think maybe I can even say I am a good traveler.  I even like the challenge involved in the adversities (which I choose to turn into adventures).  I promised to blog on this trip.  I may even write about Parkinson’s. Watch your email!
truck back design mock up[18965][19273]

Published by Carol Clupny, author The Ribbon of Road Ahead: One Woman's Remarkable Journey with Parkinson's Disease

I am a middle aged woman with Parkinson's Disease. When I was first diagnosed I spent a lot of time researching the disease. Seeing a video of a man in the advanced stages of the disease attempting to get out of his chair and then "freezing" as he tried to walk across the room got me off my butt and moving. Great adventures on the Camino de Santiago and with TEAM Pedaling for Parkinson's across IOWA, as well as the day to day adventures of life have lead me to writing. My first novel, a memoir, was published early 2019. It is called, you got it THE RIBBON OF ROAD AHEAD. Living with the degenerative neurological disease Parkinson's, ULTREIA is a word that guides me. I have chosen it as the name of my business ULTREIA BOOKS. It comes from Latin and old French and means "unfailing courage". In the old days, pilgrims would call "Ultreïa" to each other as encouragement "Go up, go further!" Nowadays we would say "You can do this thing". It takes courage to live with Parkinson's. May I face each day with unfailing courage. Ab Here is more about me; I was living an active lifestyle riding horses, hiking, climbing and snow skiing when at age fifty she was diagnosed with Parkinsons. Retiring from her career as a speech-language pathologist she decided to “take to the road” to battle the disease. Her first steps, walking out her door to the mailbox, lead to trekking over 1000 miles of pilgrimage trails on the Camino de Santiago in France and Spain. A dusty bike discovered in the garage resulted in four rides on the Des Moines Register’s Annual Great Bike Ride Across Iowa with the Pedaling for Parkinsons Team. These adventures inspired her to write a memoir The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease. Carol blogs about her everyday life as a middle-aged woman in the mid-stages of Parkinson’s disease. Her honest, humorous and casual narrative style brings the reader to an intimate understanding of Carol’s resilience and acceptance. Her blog, sharing the name of her book ”The Ribbon of Road Ahead” can be found at www.ultreiablog.org After completing a Masters of Science in Speech Pathology from Eastern Washington University Carol received certification in School Leadership and Administration from Lewis and Clark College. She provided speech pathology services and was a program director for 32 years in the wide geographic expanse of eastern Oregon. Active in the Oregon Speech-Language and Hearing Association she received honors of the association and the presidential award for her work on recruitment and retention of speech and hearing professionals. Carol presented numerous papers and projects at local, state and regional professional conferences. She was appointed by Governor Ted Kulongoski to two terms of the Oregon Board of Examiners of Speech Pathology and Audiology, the state’s licencing and consumer protection agency. Since her diagnosis in 2008, Carol has become active in the Parkinson’s Community as an advocate, an Ambassador for the Davis Phinney Foundation and support group facilitator for Parkinson's Resources of Oregon. She was appointed the regional patient representative for the Parkinson's Foundation’s Women with PD TALK study. In September of 2019 the Michael J Fox Foundation selected Carol to participate in the Parkinson’s Policy Forum in Washington DC. As an attendee at the World Parkinson Congress in 2016 in Portand, Oregon, Carol presnted a poster session examining the decision making process for patients considering deep brain stimulaiton. At the 2019 WPC in Kyoto, Japan she presented a poster on vision concerns of women with PD and lead small group discussions. Her book The Ribbon of Road Ahead has provided many speaking opportunities for Carol. In 2019 and early 2020 she visited 24 support groups in Washington, Idaho, Oregon and California to share her thoughts on living well with the disease. In addition, she has presented talks for The Center on Aging in San Francisco, Parkinson's Place in Las Vegas, Northwest Parkinson's Foundation in Richland WA and virtually through their HOPE online program. In late 2020 she rejuvenated her voice and narrated her book. It became available as an audio book in 2021. As part of this project she read stories over the airwaves on RadioParkies Australia with DJ Madonna and in Great Britain with DJ Johnny Parky. She and her husband Charlie have two adult sons. They live on a small hobby farm in eastern Oregon. Contact Information: Carol Clupny PO BOX 128, Hermiston, OR 97838 caclupny@gmail.com (541) 720-4256

4 thoughts on “Countdown: 2 days to Road Trip

  1. Hola …..
    Well done Carol & Charlie… a formidable couple! I can visualize you traveling down the highways & biways…. all the best with your trip.
    Buen Camino of a different kind from sunny South Africa!!

  2. I love to read about your travels, and enjoyed reading your book in fact I want to get a copy of my own, had borrowed a book from Sue Peterson. Hope to see you tomorrow at Macs.

  3. Another adventure on the road with Cousin Carol and Charlie. Wondering, Carol, is your book in the Stacyville Library? I will order one if need be.

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