The A Roar A Boring Not for Alice..er…The Roaring Boring Alice…not quite right…Aurora Bores Alice AHG The Northern Lights

We have two incredible sons. The stories of how they came into our lives are amazing.  They are told and retold whenever we have Holidays together. They both live far away and I miss them very much.

I wrote this for Loren on the 24th anniversary of his Clupnyhood, four years ago.

 

The A Roar A Boring Not for Alice..er…The Roaring Boring Alice…not quite right…Aurora Bores Alice AHG The Northern Lights

 

The night time sky is so fascinating.  I have watched my brother set the timer on his camera to follow the night sky as the earth rotates into morning.  At 9000 feet on Mount Adams I sat outside the tent all night, too amazed at the twinkling stars and planets to sleep.  In the Eagle Cap Wilderness I laid on my sleeping bag marveled by the August meteor showers.  In the depths of the Snake River Canyon a gentle slope of cool grass brought relief after a sweltering day on the river and we watched the moving pinpoints of airplanes and satellites and shooting stars as we shared the stories of our lives

 

Of all the nights I have gazed into the heavens, there is one that stands far above the rest.

July 8,1991

 

So many events lead us to this date.  They have been chronicled in many places.  Let it suffice to say this day changed the lives of Carol and Charlie Clupny forever.

The phone rang, calling us to another Eastern Oregon town about 2 hours away.  We rushed to gather the needed items and piled them into our car.  This was all new to us, we weren’t exactly sure what we should do.  So we drove.  And as we drove we chose a name for our baby  boy

born

 

                                                         July 5,1991

 

                                             LOREN MICHAEL CLUPNY

 

My mom shared a promise with her Cousin just before her death in AUGUST 1990.  I never heard my mom speak like this but this is what she said:  “When I get to heaven I am going to kick some butt and get Carol and Charlie a kid”.

Charlie was in the driver’s seat whisking us home to a place that was not prepared for a baby.  We had nothing ..  I started to get anxious thinking “Loren is going to have to sleep in a shoe box (Charlie’s size 12)  or we will have to pull out a drawer and tuck  him in with socks and t-shirts.” (swaddling clothes, manger)  Panic was pushing its way up my throat.  I was truly terrified. But before I could ask “Charlie can we take him back” I saw something out the window.

In the distance I saw strange lights.  Unusual flickering, flaming, weaving, churning lights.  Colors so brilliant and then so fading that it made me wonder if I was imagining them. I thought it could have been a forest fire.  Yet that did not make sense. The behavior of the lights was unlike any flame I had seen.

Charlie carefully steered the car through a rest area parking lot full of people who had also witnessed the phenomena from the freeway.

aurora borealis

The aurora can be seen best magnetic midnight. In northern latitudes, the effect is known as the aurora borealis (or the northern lights), named after the Roman goddess of dawn, Aurora, and the Greek name for the north wind, Boreas, by Galileo in 1619. 

Dawn Wind.  It is rare that the wind blows at dawn.  And when it does it brings us ALIVE..It AWAKENs us in a way that keeps us from falling back to sleep.  It makes the dawn fresh and clean and vivid. Loren Michael Clupny you are a rare and unique man…You sing life, you dance life, and you love more and deeper than life,  more than we can understand.

 

That night, July 8,  1991 the aurora borealis surrounded us in our little car with our three-day old baby and escorted us home.

And in the dawn that little baby awakened what was dead inside and we became family.

 

                            Loren Michael Clupny,   you are Aurora, dawn. Borealis, wind.   

                                          Happy 24th anniversary of that night.

 

Published by Carol Clupny, author The Ribbon of Road Ahead: One Woman's Remarkable Journey with Parkinson's Disease

I am a middle aged woman with Parkinson's Disease. When I was first diagnosed I spent a lot of time researching the disease. Seeing a video of a man in the advanced stages of the disease attempting to get out of his chair and then "freezing" as he tried to walk across the room got me off my butt and moving. Great adventures on the Camino de Santiago and with TEAM Pedaling for Parkinson's across IOWA, as well as the day to day adventures of life have lead me to writing. My first novel, a memoir, was published early 2019. It is called, you got it THE RIBBON OF ROAD AHEAD. Living with the degenerative neurological disease Parkinson's, ULTREIA is a word that guides me. I have chosen it as the name of my business ULTREIA BOOKS. It comes from Latin and old French and means "unfailing courage". In the old days, pilgrims would call "Ultreïa" to each other as encouragement "Go up, go further!" Nowadays we would say "You can do this thing". It takes courage to live with Parkinson's. May I face each day with unfailing courage. Ab Here is more about me; I was living an active lifestyle riding horses, hiking, climbing and snow skiing when at age fifty she was diagnosed with Parkinsons. Retiring from her career as a speech-language pathologist she decided to “take to the road” to battle the disease. Her first steps, walking out her door to the mailbox, lead to trekking over 1000 miles of pilgrimage trails on the Camino de Santiago in France and Spain. A dusty bike discovered in the garage resulted in four rides on the Des Moines Register’s Annual Great Bike Ride Across Iowa with the Pedaling for Parkinsons Team. These adventures inspired her to write a memoir The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease. Carol blogs about her everyday life as a middle-aged woman in the mid-stages of Parkinson’s disease. Her honest, humorous and casual narrative style brings the reader to an intimate understanding of Carol’s resilience and acceptance. Her blog, sharing the name of her book ”The Ribbon of Road Ahead” can be found at www.ultreiablog.org After completing a Masters of Science in Speech Pathology from Eastern Washington University Carol received certification in School Leadership and Administration from Lewis and Clark College. She provided speech pathology services and was a program director for 32 years in the wide geographic expanse of eastern Oregon. Active in the Oregon Speech-Language and Hearing Association she received honors of the association and the presidential award for her work on recruitment and retention of speech and hearing professionals. Carol presented numerous papers and projects at local, state and regional professional conferences. She was appointed by Governor Ted Kulongoski to two terms of the Oregon Board of Examiners of Speech Pathology and Audiology, the state’s licencing and consumer protection agency. Since her diagnosis in 2008, Carol has become active in the Parkinson’s Community as an advocate, an Ambassador for the Davis Phinney Foundation and support group facilitator for Parkinson's Resources of Oregon. She was appointed the regional patient representative for the Parkinson's Foundation’s Women with PD TALK study. In September of 2019 the Michael J Fox Foundation selected Carol to participate in the Parkinson’s Policy Forum in Washington DC. As an attendee at the World Parkinson Congress in 2016 in Portand, Oregon, Carol presnted a poster session examining the decision making process for patients considering deep brain stimulaiton. At the 2019 WPC in Kyoto, Japan she presented a poster on vision concerns of women with PD and lead small group discussions. Her book The Ribbon of Road Ahead has provided many speaking opportunities for Carol. In 2019 and early 2020 she visited 24 support groups in Washington, Idaho, Oregon and California to share her thoughts on living well with the disease. In addition, she has presented talks for The Center on Aging in San Francisco, Parkinson's Place in Las Vegas, Northwest Parkinson's Foundation in Richland WA and virtually through their HOPE online program. In late 2020 she rejuvenated her voice and narrated her book. It became available as an audio book in 2021. As part of this project she read stories over the airwaves on RadioParkies Australia with DJ Madonna and in Great Britain with DJ Johnny Parky. She and her husband Charlie have two adult sons. They live on a small hobby farm in eastern Oregon. Contact Information: Carol Clupny PO BOX 128, Hermiston, OR 97838 caclupny@gmail.com (541) 720-4256

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