I am Legit

Around a table at a bar, sitting with strangers, I completely passed myself off as a pediatrician.  Luckily the music was too loud for anyone to hear what I told them about my fictitious practice, and no one asked for my card.  PHEW

Why I did that I don’t know.  It seemed fun at the time.  

Here is some TRUE information about me.  Ask anyone.  If they know me they will say “I never knew she did THAT.”  If they don’t know me they will say  “She did THAT?”

                                                                                                                                            Carol Clupny     Biography

 

Carol Clupny grew up riding horses, climbing trees and tubing down the creek.  The fish would not stay off her line nor the tales from her lips as she grew up into a fun-loving, storytelling adult.  It came as a blow when at age fifty she was diagnosed with Parkinson’s Disease.  Retiring from her career as a speech-language pathologist she became fed-up with sitting in a recliner and decided to travel. Her first steps, walking out her door to the mailbox, lead to treading over 1000 miles of pilgrimage trails on the Camino de Santiago in France and Spain.  A dusty bike discovered in the garage resulted in three rides on the Des Moines Registers Annual Great Bike Ride Across Iowa.  She lived through these adventures to write a book The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease.

Carol blogs about her everyday life as a middle-aged woman in the mid-stages of Parkinson’s disease.  Her honest, humorous and casual narrative style brings the reader to a rocking chair moment. Sitting beside Carol on her front porch, listening to the cries of peacocks calling in the distance and horses chomping grass in the pasture just across the fence the reader understands why Carol is always writing about The Ribbon of Road Aheadwww.ultreiablog.org

Carol received a Masters of Science in Speech Pathology from Eastern Washington University and further certification in School Leadership and  Administration from Lewis and Clark College. She provided speech pathology services and served as program director for 31 years in the wide geographic area of eastern Oregon. Active in the Oregon Speech-Language and Hearing Association she received honors of the association and the presidential award for her work on recruitment and retention of speech and hearing professionals. Carol presented numerous papers and projects at local,  state and regional professional conferences.  She was appointed by Governor  Ted Kulongoski to two terms of the Oregon Board of Examiners of Speech Pathology and Audiology.    She was selected by the Parkinson’s Foundation to provide leadership in planning a region-wide forum of women with Parkinson’s.  Recently the Michael J Fox Foundation chose Carol to attend the National Parkinson’s Disease Policy Forum in Washington DC.  Carol is a support group facilitator for Parkinson’s Resources of Oregon and an Ambassador for the Davis Phinney Foundation for Parkinson’s.

Carol and her husband Charlie have raised two boys, two horses and numerous calves (but no chickens)  over the years on their small acreage in Hermiston, Oregon.

 

Press Release:

MEDIA CONTACT: Carol Clupny

(541)720-4256

ultreiabooks@gmail.com       

                                                                                                   Hermiston Parkinson’s Patient Carol Clupny Releases First Title

                                                                              The Ribbon of Road Ahead:  One Woman’s Remarkable Journey with Parkinson’s Disease

Hermiston, OR   March 15, 2019.   Carol Clupny released her memoir The Ribbon of Road Ahead:  One Woman’s Remarkable Journey with Parkinson’s Disease.  Suffering for years from unexplained symptoms, Carol was diagnosed with Parkinson’s Disease in 2008. She retired as a speech-language pathologist after thirty-one years with the InterMountain Education Service District and settled into acceptance. Learning to live with a progressive neurological disease challenged her once active lifestyle. Shocked when getting outside to the mailbox became a struggle, she began walking; trekking over a thousand miles on pilgrimage trails in France and Spain. Reading that bicycling helped mitigate the symptoms of Parkinson’s Disease she started riding; cycling across Iowa four times with the Pedaling for Parkinson’s Team. In 2016, Carol had a deep brain stimulation procedure which further slowed the advancement of symptoms.

Claude Tranchant, author of From Boots to Bliss says, “This book is a story of resilience, strength, and belief in oneself.”

Holly Chaimov, executive director of Parkinson’s Resources of Oregon describes the book as “entertaining and enlightening.”

Carol grew up in Walla Walla, WA., attended DeSales High School and Walla Walla Community College. She received a Master of Science in Communication Disorders from Eastern Washington University and studied school leadership at Lewis and Clark College.

She is active in the Parkinson’s community as a fundraiser, a support group leader for Parkinson’s Resources of Oregon and an ambassador for the Davis Phinney Foundation.

The 295-page soft cover book includes photographs of the author’s adventures.  The book is priced at $17 with an electronic version for $6.99. Autographed copies are available from the author by ordering from http://www.ultrieablog.org. The book is also available at Hermiston Drug and Gift, Broadway Books in Portland, Amazon and Kindle.

The author is currently scheduling appearances for fall and winter of 2019-20.

Please contact the author at (541) 720-4256 or ultreiabooks@gmail.com for more information

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2019-02-19 (2)launch photo 1Three long distance treks ...only the hat and pack remained the same

Published by Carol Clupny, author The Ribbon of Road Ahead: One Woman's Remarkable Journey with Parkinson's Disease

I am a middle aged woman with Parkinson's Disease. When I was first diagnosed I spent a lot of time researching the disease. Seeing a video of a man in the advanced stages of the disease attempting to get out of his chair and then "freezing" as he tried to walk across the room got me off my butt and moving. Great adventures on the Camino de Santiago and with TEAM Pedaling for Parkinson's across IOWA, as well as the day to day adventures of life have lead me to writing. My first novel, a memoir, was published early 2019. It is called, you got it THE RIBBON OF ROAD AHEAD. Living with the degenerative neurological disease Parkinson's, ULTREIA is a word that guides me. I have chosen it as the name of my business ULTREIA BOOKS. It comes from Latin and old French and means "unfailing courage". In the old days, pilgrims would call "Ultreïa" to each other as encouragement "Go up, go further!" Nowadays we would say "You can do this thing". It takes courage to live with Parkinson's. May I face each day with unfailing courage. Ab Here is more about me; I was living an active lifestyle riding horses, hiking, climbing and snow skiing when at age fifty she was diagnosed with Parkinsons. Retiring from her career as a speech-language pathologist she decided to “take to the road” to battle the disease. Her first steps, walking out her door to the mailbox, lead to trekking over 1000 miles of pilgrimage trails on the Camino de Santiago in France and Spain. A dusty bike discovered in the garage resulted in four rides on the Des Moines Register’s Annual Great Bike Ride Across Iowa with the Pedaling for Parkinsons Team. These adventures inspired her to write a memoir The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease. Carol blogs about her everyday life as a middle-aged woman in the mid-stages of Parkinson’s disease. Her honest, humorous and casual narrative style brings the reader to an intimate understanding of Carol’s resilience and acceptance. Her blog, sharing the name of her book ”The Ribbon of Road Ahead” can be found at www.ultreiablog.org After completing a Masters of Science in Speech Pathology from Eastern Washington University Carol received certification in School Leadership and Administration from Lewis and Clark College. She provided speech pathology services and was a program director for 32 years in the wide geographic expanse of eastern Oregon. Active in the Oregon Speech-Language and Hearing Association she received honors of the association and the presidential award for her work on recruitment and retention of speech and hearing professionals. Carol presented numerous papers and projects at local, state and regional professional conferences. She was appointed by Governor Ted Kulongoski to two terms of the Oregon Board of Examiners of Speech Pathology and Audiology, the state’s licencing and consumer protection agency. Since her diagnosis in 2008, Carol has become active in the Parkinson’s Community as an advocate, an Ambassador for the Davis Phinney Foundation and support group facilitator for Parkinson's Resources of Oregon. She was appointed the regional patient representative for the Parkinson's Foundation’s Women with PD TALK study. In September of 2019 the Michael J Fox Foundation selected Carol to participate in the Parkinson’s Policy Forum in Washington DC. As an attendee at the World Parkinson Congress in 2016 in Portand, Oregon, Carol presnted a poster session examining the decision making process for patients considering deep brain stimulaiton. At the 2019 WPC in Kyoto, Japan she presented a poster on vision concerns of women with PD and lead small group discussions. Her book The Ribbon of Road Ahead has provided many speaking opportunities for Carol. In 2019 and early 2020 she visited 24 support groups in Washington, Idaho, Oregon and California to share her thoughts on living well with the disease. In addition, she has presented talks for The Center on Aging in San Francisco, Parkinson's Place in Las Vegas, Northwest Parkinson's Foundation in Richland WA and virtually through their HOPE online program. In late 2020 she rejuvenated her voice and narrated her book. It became available as an audio book in 2021. As part of this project she read stories over the airwaves on RadioParkies Australia with DJ Madonna and in Great Britain with DJ Johnny Parky. She and her husband Charlie have two adult sons. They live on a small hobby farm in eastern Oregon. Contact Information: Carol Clupny PO BOX 128, Hermiston, OR 97838 caclupny@gmail.com (541) 720-4256

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