The Community of Bloggers

garden

How do I make my book grow?  One suggestion was “BLOG”.  But what if I don’t like to blog?  I mean, doesn’t it take time to research meaningful topics. And then  I would have to get people to read my blog.  Do I really have to advertise?  How about if I just write stuff and call it a blog?

Like the song below, I just need to find some fertile ground to plant the  seeds (readers)

And I need to gently rake and hoe, getting at those weeds and tossing aside those stones.

There will be some warmth (throw in some love and support from other bloggers)

Until I get rained upon with tons of readers.

A fellow blogger who also lives well with Parkinsons Disease recent posted with the title “Do I need a Wolf Pack?”  She wrote about when she first blogged after her diagnosis in 2012.  She thought she had a unique topic, but found that there were many people already blogging about Parkinson’s disease. In fact, there is a whole community of bloggers who are willing to help each other.

Her name is Laura Kennedy Gould and she is a Pacific Northwest Parkinson’s blogger, who received her diagnosis in 2012.  Her blog is called “The Magic Trick- Life with Parkinson’s”.  In addition to writing about her own experience with PD, she has dusted off her journalism skills to write about PD research and other scientific topics related to PD.  Click on the links for examples of her humorous and illuminating posts – and also to find out why it’s called “The Magic Trick”

Not only do these bloggers share a unique insight, but they also are creative in naming their blogs. Here are some of them:

The Magic Trick- Life with Parkinson’s

Twitchy Woman – My Adventures With Parkinson’s Disease

The Perky Parkie

I am sure I will like being in a “Wolf Pack”.  This  community of bloggers will certainly be a place I can find companionship.

 Garden Song

Inch by inch, row by row, I’m gonna make this garden grow
All it takes is a rake and a hoe and a piece of fertile ground
Inch by inch, row by row, someone bless these seeds I sow
Someone warm them from below ’til the rain comes tumbling down

Pullin’ weeds and pickin’ stones, we are made of dreams and bones
I feel the need to grow my own ’cause the time is close at hand
Grain for grain, sun and rain, I’ll find my way in nature’s chain
I tune my body and my brain to the music of the land

Inch by inch, row by row, I’m gonna make this garden grow
All it takes is a rake and a hoe and a piece of fertile ground
Inch by inch, row by row, someone bless these seeds I sow
Someone warm them from below ’til the rain comes tumbling down

So plant your rows straight and long, temper them with prayer and song
Mother earth can keep you strong if you give her love and care
Now an old crow watching hungrily from his perch in yonder tree
In my garden I’m as free as that feathered thief up there

Inch by inch, row by row, I’m gonna make this garden grow
All it takes is a rake and a hoe and a piece of fertile ground
Inch by inch, row by row, someone bless these seeds I sow
Someone warm them from below ’til the rain comes tumbling

Published by Carol Clupny, author The Ribbon of Road Ahead: One Woman's Remarkable Journey with Parkinson's Disease

I am a middle aged woman with Parkinson's Disease. When I was first diagnosed I spent a lot of time researching the disease. Seeing a video of a man in the advanced stages of the disease attempting to get out of his chair and then "freezing" as he tried to walk across the room got me off my butt and moving. Great adventures on the Camino de Santiago and with TEAM Pedaling for Parkinson's across IOWA, as well as the day to day adventures of life have lead me to writing. My first novel, a memoir, was published early 2019. It is called, you got it THE RIBBON OF ROAD AHEAD. Living with the degenerative neurological disease Parkinson's, ULTREIA is a word that guides me. I have chosen it as the name of my business ULTREIA BOOKS. It comes from Latin and old French and means "unfailing courage". In the old days, pilgrims would call "Ultreïa" to each other as encouragement "Go up, go further!" Nowadays we would say "You can do this thing". It takes courage to live with Parkinson's. May I face each day with unfailing courage. Ab Here is more about me; I was living an active lifestyle riding horses, hiking, climbing and snow skiing when at age fifty she was diagnosed with Parkinsons. Retiring from her career as a speech-language pathologist she decided to “take to the road” to battle the disease. Her first steps, walking out her door to the mailbox, lead to trekking over 1000 miles of pilgrimage trails on the Camino de Santiago in France and Spain. A dusty bike discovered in the garage resulted in four rides on the Des Moines Register’s Annual Great Bike Ride Across Iowa with the Pedaling for Parkinsons Team. These adventures inspired her to write a memoir The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease. Carol blogs about her everyday life as a middle-aged woman in the mid-stages of Parkinson’s disease. Her honest, humorous and casual narrative style brings the reader to an intimate understanding of Carol’s resilience and acceptance. Her blog, sharing the name of her book ”The Ribbon of Road Ahead” can be found at www.ultreiablog.org After completing a Masters of Science in Speech Pathology from Eastern Washington University Carol received certification in School Leadership and Administration from Lewis and Clark College. She provided speech pathology services and was a program director for 32 years in the wide geographic expanse of eastern Oregon. Active in the Oregon Speech-Language and Hearing Association she received honors of the association and the presidential award for her work on recruitment and retention of speech and hearing professionals. Carol presented numerous papers and projects at local, state and regional professional conferences. She was appointed by Governor Ted Kulongoski to two terms of the Oregon Board of Examiners of Speech Pathology and Audiology, the state’s licencing and consumer protection agency. Since her diagnosis in 2008, Carol has become active in the Parkinson’s Community as an advocate, an Ambassador for the Davis Phinney Foundation and support group facilitator for Parkinson's Resources of Oregon. She was appointed the regional patient representative for the Parkinson's Foundation’s Women with PD TALK study. In September of 2019 the Michael J Fox Foundation selected Carol to participate in the Parkinson’s Policy Forum in Washington DC. As an attendee at the World Parkinson Congress in 2016 in Portand, Oregon, Carol presnted a poster session examining the decision making process for patients considering deep brain stimulaiton. At the 2019 WPC in Kyoto, Japan she presented a poster on vision concerns of women with PD and lead small group discussions. Her book The Ribbon of Road Ahead has provided many speaking opportunities for Carol. In 2019 and early 2020 she visited 24 support groups in Washington, Idaho, Oregon and California to share her thoughts on living well with the disease. In addition, she has presented talks for The Center on Aging in San Francisco, Parkinson's Place in Las Vegas, Northwest Parkinson's Foundation in Richland WA and virtually through their HOPE online program. In late 2020 she rejuvenated her voice and narrated her book. It became available as an audio book in 2021. As part of this project she read stories over the airwaves on RadioParkies Australia with DJ Madonna and in Great Britain with DJ Johnny Parky. She and her husband Charlie have two adult sons. They live on a small hobby farm in eastern Oregon. Contact Information: Carol Clupny PO BOX 128, Hermiston, OR 97838 caclupny@gmail.com (541) 720-4256

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