Kudos for The Ribbon of Road Ahead

Here are some comments I have received

Carol. Thank you. Wow, amazing work on your book.

Thank you for sharing your story, your journey.

I have admired you in your work, and even more now in the way you have been tackling your Parkinson’s.

I know many who have a chronic illness, my mom being one of them, and see how all of you with your ups and downs, manage to be an example of perseverance,  strength and faith in God.

You are an example to so many. 

God bless you.

Chuchy

Carol is an incredible writer and storyteller. I haven’t put the book down since I started. I’m savoring every word of her courageous journey. She tackles unbelievable physical feats with grace and humor and makes you feel like you are on the road walking beside her. BUY HER BOOK. It’s a must read for anyone especially if you have Parkinson’s or love stories of triumph over insurmountable odds. ❤️ Julie F

The literature of disease, illness and disability is full of books that make me feel guilty for not being a “super-hero.” Carol’s book is not one of those. She makes it clear throughout her memoir how relentlessly hard life with Parkinson’s disease is. I can relate to her struggles, setbacks, and obstacles because I have them, too. I identify with her. What enriches her story and gives me real-life inspiration is how she keeps thinking up wild and wonderful things to do anyway–things that make her life even more difficult but also more meaningful and worthwhile! She provides a role model for continuing to live well when it seems impossible to do so. I need this; I need to see how I can still have goals that are attainable for me, but require a strong sense of purpose and commitment. Her victories make mine seem possible. The title of her book reveals her perspective: it’s not about the destination, it’s about the long, hard journey, and I can do it, too! Every “parkie” should read this book, and those who care for someone with Parkinson’s will benefit, too. Gilbert

This memoir about Carol’s struggle with and determination to overcome affects of Parkinson’s Disease is remarkable! The author opens up her deepest feelings and yet is never afraid to laugh at herself in her struggle. She is an inspiration to not only those with Parkinson’s, but any other debilitating disease. I love how she hears of important research and results and then goes for it! It was fun being along for the journey of the Camino and RAGBRAI. She never glosses over the pain or the difficulty but instead uses her faith in God and the encouragement of her family and friends to keep her moving forward. So glad she was inspired to write this!

Carol takes us along on her personal journey through the trials, challenges and traumas of adjusting to a Parkinson’s diagnosis at 50 years old. One might expect that this would be boring, tedious and dull, but not with Carol. She will have you laughing and crying along the way through multiple treks on the Camino de Santiago, the RAGBRAI bicycle rides through Iowa on the back of her tandem bike and the ultimate trip through deep brain surgery. She entertains, inspires and challenges anyone struggling with a tough patch in the road. If you are looking for encouragement on your own journey or just want to follow along with this fun, positive, resilient lady, grab this book and read. You will be glad you did. Mary Kinsch

Through her personable writing style, Carol shares her Parkinson’s journey with the reader in a way that inspires, educates, and warms the heart. Through the ups and the downs, and from darkness and into the light, this story offers encouragement and a nudge to each of us to “do something good,” with the challenges we face. Jenny Davis

Carol Clupny takes readers on an incredibly honest and brave journey through her challenges and many victories after her diagnosis of Parkinson’s disease at age 50. As she travels on the Camino del Santiago in Spain, not once but three times, the reader is right there facing the hills and rain and able to celebrate her pushing the limits of this incurable neurologic condition. From travels walking through Spain to biking across Iowa, to brain surgery back in her home in Oregon, she takes on life’s challenges with spirit, love, faith and a contagious sense of humor. The story is a true inspiration for anyone. Jill

Published by Carol Clupny, author The Ribbon of Road Ahead: One Woman's Remarkable Journey with Parkinson's Disease

I am a middle aged woman with Parkinson's Disease. When I was first diagnosed I spent a lot of time researching the disease. Seeing a video of a man in the advanced stages of the disease attempting to get out of his chair and then "freezing" as he tried to walk across the room got me off my butt and moving. Great adventures on the Camino de Santiago and with TEAM Pedaling for Parkinson's across IOWA, as well as the day to day adventures of life have lead me to writing. My first novel, a memoir, was published early 2019. It is called, you got it THE RIBBON OF ROAD AHEAD. Living with the degenerative neurological disease Parkinson's, ULTREIA is a word that guides me. I have chosen it as the name of my business ULTREIA BOOKS. It comes from Latin and old French and means "unfailing courage". In the old days, pilgrims would call "Ultreïa" to each other as encouragement "Go up, go further!" Nowadays we would say "You can do this thing". It takes courage to live with Parkinson's. May I face each day with unfailing courage. Ab Here is more about me; I was living an active lifestyle riding horses, hiking, climbing and snow skiing when at age fifty she was diagnosed with Parkinsons. Retiring from her career as a speech-language pathologist she decided to “take to the road” to battle the disease. Her first steps, walking out her door to the mailbox, lead to trekking over 1000 miles of pilgrimage trails on the Camino de Santiago in France and Spain. A dusty bike discovered in the garage resulted in four rides on the Des Moines Register’s Annual Great Bike Ride Across Iowa with the Pedaling for Parkinsons Team. These adventures inspired her to write a memoir The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease. Carol blogs about her everyday life as a middle-aged woman in the mid-stages of Parkinson’s disease. Her honest, humorous and casual narrative style brings the reader to an intimate understanding of Carol’s resilience and acceptance. Her blog, sharing the name of her book ”The Ribbon of Road Ahead” can be found at www.ultreiablog.org After completing a Masters of Science in Speech Pathology from Eastern Washington University Carol received certification in School Leadership and Administration from Lewis and Clark College. She provided speech pathology services and was a program director for 32 years in the wide geographic expanse of eastern Oregon. Active in the Oregon Speech-Language and Hearing Association she received honors of the association and the presidential award for her work on recruitment and retention of speech and hearing professionals. Carol presented numerous papers and projects at local, state and regional professional conferences. She was appointed by Governor Ted Kulongoski to two terms of the Oregon Board of Examiners of Speech Pathology and Audiology, the state’s licencing and consumer protection agency. Since her diagnosis in 2008, Carol has become active in the Parkinson’s Community as an advocate, an Ambassador for the Davis Phinney Foundation and support group facilitator for Parkinson's Resources of Oregon. She was appointed the regional patient representative for the Parkinson's Foundation’s Women with PD TALK study. In September of 2019 the Michael J Fox Foundation selected Carol to participate in the Parkinson’s Policy Forum in Washington DC. As an attendee at the World Parkinson Congress in 2016 in Portand, Oregon, Carol presnted a poster session examining the decision making process for patients considering deep brain stimulaiton. At the 2019 WPC in Kyoto, Japan she presented a poster on vision concerns of women with PD and lead small group discussions. Her book The Ribbon of Road Ahead has provided many speaking opportunities for Carol. In 2019 and early 2020 she visited 24 support groups in Washington, Idaho, Oregon and California to share her thoughts on living well with the disease. In addition, she has presented talks for The Center on Aging in San Francisco, Parkinson's Place in Las Vegas, Northwest Parkinson's Foundation in Richland WA and virtually through their HOPE online program. In late 2020 she rejuvenated her voice and narrated her book. It became available as an audio book in 2021. As part of this project she read stories over the airwaves on RadioParkies Australia with DJ Madonna and in Great Britain with DJ Johnny Parky. She and her husband Charlie have two adult sons. They live on a small hobby farm in eastern Oregon. Contact Information: Carol Clupny PO BOX 128, Hermiston, OR 97838 caclupny@gmail.com (541) 720-4256

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