Charlie turned the car the opposite direction of home. “Gotta stop at the hardware store” he said. Oh my, I knew to get there from this direction meant several obstacles: a stop sign, a hard right, two speed bumps, a gravel parking lot with a huge mud puddle and the transition between the gravel and pavement. Putting my right hand over the neurostimulator implanted just below my left collar bone and cringing was my way of saying “not a good choice”. It had been just a week since the battery pack had been replaced. There were nearly 15 dissolvable stitches holding the pocket of flesh closed. I expected a good jostling through this obstacle course. It wasn’t that bad.

It’s over a month now since that implant. It appears that the surgeon located the device slightly higher and at a different angle. I am thinking there is about 50% less “bounce” when I step. The stitches are gone and just a little itchy discomfort remains.

Still, I think of it as strange, yet a minor inconvenience to all the benefit I get from Deep Brain Stimulation.

Published by Carol Clupny, author Ultreia Books

I am a middle aged woman with Parkinson's Disease. When I was first diagnosed I spent a lot of time researching the disease. Seeing a video of a man in the advanced stages of the disease attempting to get out of his chair and then "freezing" as he tried to walk across the room got me off my butt and moving. Great adventures on the Camino de Santiago and with TEAM Pedaling for Parkinson's across IOWA, as well as the day to day adventures of life have lead me to writing. My first novel, a memoir, will be published early 2019. It is called, you got it THE RIBBON OF ROAD AHEAD. Living with the degenerative neurological disease Parkinson's, ULTREIA is a word that guides me. I have chosen it as the name of my business ULTREIA BOOKS. It comes from Latin and old French and means "unfailing courage". In the old days, pilgrims would call "Ultreïa" to each other as encouragement "Go up, go further!" Nowadays we would say "You can do this thing". It takes courage to live with Parkinson's. May I face each day with unfailing courage.

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