One Woman's Remarkable Journey with Parkinson's Disease by CAROL CLUPNY
DBS Countdown to DBS 9 days to brain surgery.
I think it’s Monday. It’s also the day after the “Spring Forward” time change. I would like to say that the change does not affect me. I would also like to think that the wind does not affect me. Or the change in barometric pressure when a weather front pushes through our area. Yesterday we had all three and I think it’s a trifecta. Wish I could win money, but I am not coming out on top of the betting game. I need to take action.
Having a conversation with me is like trying to herd cats on the Hermiston Butte. Who would even think of doing such a thing? Yet if you did… you might experience this…The big cat sees a rodent, the black cat is scared to death and hugs close, the young cats don’t follow trails and those stray cats we picked up on the hike turn this way and that and totally have their own agenda. The cats, like me, may never quite get to where they are supposed to be…the end of the story…but I will try to get the whole though through without “bird (cat) walking” too much.
Time changes throw everyone off just little. Young children may take awhile to adapt. We all enjoy a bit more daylight yet it throws the dinner schedule off. I make mention here as it throws my medication off by an hour. Knowing that a change is coming I need to make some decisions. Prince Charlie hasn’t adjusted and brings the med box around, I let him know I am on top of this one. I can suffer through one hour and get back on schedule with the time change.
Bird walk #1. Skipping back a day to Saturday. Nancy on keyboards and me on guitar accompanied Sara, Doreen and Charlie for Mass music The parishioners who had lingered in the foyer were gathered up and witnessed as Fr. Maxwell anointed me. Feeling blessed and hoping for healing, Charlie drove to the GP in Pendleton where we had been invited to listen to the Irish Singers. Their music was fun. We met up with so many friends new and old and former fellow co–workers and friends of friends, and their daughters and sister’s friends and boyfriends and girlfriends and husbands and wives that well, I truly listened to maybe one song.
Bird Walk #2 Sunday was busy, but in an nice sort of way. I wanted Charlie to see me ride the new bike. By the time we were dressed for the possible rain, it had arrived. Good thing we have the gear because it rained hard and we rode hard.
Then the wind blew. Hard. I mean really hard. We were home just in time.
The weather cleared off just as Fr Maxwell and our builders arrived to bless the new house site…
In was clear blue blue sky and that green green grass of early spring. We had nice visit with the three. Glad to know the workers will be protected from injury and the land ward off evil.
A stiff stiff and sore and tired Carol fell asleep on the couch. Like so many times when I fall asleep early I woke up at midnight (Today so I am back on track) and was wide awake until 5:30. I looked at the computer screen the entire time. Made no decisions, bought nothing, read nothing, wrote nothing. What a waste. Falling back to sleep I started having cramps in my toes, then my calf, then my hamstrings. Prince Charlie arrived on the scene with my medication and the “cramp pills”. And I slept to 9. woke, then back to sleep…awake,sleep and finallyup at noon. Wind was up, Charlie was gone, I felt wobbly. No bike ride today.
I set out to put the laundry away. While doing so, the top closet shelf came down on me taking the next shelf and all the clothes to the floor. Ok its mess. But I am not hurt. I gathered everything up, replaced the shelves and start putting putting the clothes away when the darn thing falls again. Apparently I needed stronger little brackets as the current ones were bent. Sitting there on the floor, under a pile of clothes that had escaped the closet… I had to grin. I started to giggle. No one else would see the humor in this mess, or would they? Would you?
Something strange occurred while I was giggling,and it made me stop and ponder. My Acoustic Celtic station on Pandora Radio changed. The station was different, very different indeed. Digging out from under the fallen clothes, I reach for my iPad to see whats on. The new channel was “Slightly Stupid Radio”. How perfect for this catastrophe!
I changed it back.
The pile of clothes from the shelves was left on the floor. The iPhone was near a comfortable couch. I started to type this blog post and there is an “error”. How can there be an error on my iPhone? There was no opportunity to save. I lost what I wrote. Saddened, I turned on the computer, opened the blog, and there it was…everything I had written. Relieved, I fell asleep right then and there.
Only three things knocked me off kilter (time change, wind, barometric pressure) and three happenings (shelf falling, shelf falling again, no, was it music or iPhone…or maybe those cats!) Survival with good humor was the key.
Ice Cream is good in Spain as is napping
The point of all of this is…little irritations can add up to big issues. Anger can escape over the smallest things. Being irritated and upset is a waste of personal energy. Not going to let my energy be wasted. No, won’t do it. I will just grab a couple of spoonfuls of Cherry Garcia and take a little nap.
Ice cream and naps in just the right amounts do wonders. Don’t waste the energy on anger.