Countdown to DBS 13 days to go

Countdown to DBS 13 days to go March 10 I wish this cross state drive was taking me to Corvallis to see the Hermiston girls play in the 5A basketball state championships.
But maybe another year for that. I did enjoy listening to the radio and hearing names of kids I have watched participate in sports since they were little. Jansen is an amazing defensive player with several steals and blocked shots in last night’s game. She had a couple of nice three pointers, too. Sara,according to the radio announcer, hit her 3’s from NBA range. Shaelyn “drained” the net on her “3”. Hayden and Kenzie were forces to be reckoned with on both ends of the court.

As we drive to Portland we are listening to the Bulldogs play Bend in the consolation bracket. Hearing the broadcast brought back memories…
I wasn’t the greatest basketball player but I worked hard and loved the game. Amazingly I played my sophomore year of college for Walla Walla Community College. The coach asked me to return to the team the following year I decided to concentrate on academics and returned to EWU. I had many dreams that I did turn out again. These recurring dreams showed me at whatever age I was as an adult doing drills and scrimmages with 18-19 year olds. Huffing and puffing, I did not quite fit in with the tall lean athletes.
One game with the Warriors stood out from all the rest. From the wing position the offensive play brought me out to the top of the key. I caught a pass and shot a swish for 3. The announcer would have called it a “drain”. The next play I brought the ball up with the point. I headed to the top of the key and swish for 3. I repeated it another two times for 12 unanswered points. Nothing ever happened like this in the past, or again. The defense wisened up and shut me down after that. It was a crazy fun 2 minutes of basketball fame.
That was a great time
In my life. Playing team sports teaches you comraderie and allows you opportunities to develop personal leadership skills, following another’s direction and working alongside others for towards a common goal.
There are teams of people working on the goal of supporting me right now. Some are on the same teams and don’t even know it! There is the prayer warrior team, the
cook Clupnys some dinner team, the friends visit team, the keep Carol distracted and positive team, the music team, and of courses the medical and health related teams. And the one man team Charlie who would do and does anything and everything to keep me moving. You all are champs! You shoot the ” threes” from NBA range like Sara. If the ball gets in the wrong hands, you make a quick steal like Jansen and turn the game around. When it gets close like now you put on the full court press and pull me to victory. Thanks to all of you. I wouldn’t even want to consider deep brain stimulation surgery without you on my team!

Published by Carol Clupny, author The Ribbon of Road Ahead: One Woman's Remarkable Journey with Parkinson's Disease

I am a middle aged woman with Parkinson's Disease. When I was first diagnosed I spent a lot of time researching the disease. Seeing a video of a man in the advanced stages of the disease attempting to get out of his chair and then "freezing" as he tried to walk across the room got me off my butt and moving. Great adventures on the Camino de Santiago and with TEAM Pedaling for Parkinson's across IOWA, as well as the day to day adventures of life have lead me to writing. My first novel, a memoir, was published early 2019. It is called, you got it THE RIBBON OF ROAD AHEAD. Living with the degenerative neurological disease Parkinson's, ULTREIA is a word that guides me. I have chosen it as the name of my business ULTREIA BOOKS. It comes from Latin and old French and means "unfailing courage". In the old days, pilgrims would call "Ultreïa" to each other as encouragement "Go up, go further!" Nowadays we would say "You can do this thing". It takes courage to live with Parkinson's. May I face each day with unfailing courage. Ab Here is more about me; I was living an active lifestyle riding horses, hiking, climbing and snow skiing when at age fifty she was diagnosed with Parkinsons. Retiring from her career as a speech-language pathologist she decided to “take to the road” to battle the disease. Her first steps, walking out her door to the mailbox, lead to trekking over 1000 miles of pilgrimage trails on the Camino de Santiago in France and Spain. A dusty bike discovered in the garage resulted in four rides on the Des Moines Register’s Annual Great Bike Ride Across Iowa with the Pedaling for Parkinsons Team. These adventures inspired her to write a memoir The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease. Carol blogs about her everyday life as a middle-aged woman in the mid-stages of Parkinson’s disease. Her honest, humorous and casual narrative style brings the reader to an intimate understanding of Carol’s resilience and acceptance. Her blog, sharing the name of her book ”The Ribbon of Road Ahead” can be found at www.ultreiablog.org After completing a Masters of Science in Speech Pathology from Eastern Washington University Carol received certification in School Leadership and Administration from Lewis and Clark College. She provided speech pathology services and was a program director for 32 years in the wide geographic expanse of eastern Oregon. Active in the Oregon Speech-Language and Hearing Association she received honors of the association and the presidential award for her work on recruitment and retention of speech and hearing professionals. Carol presented numerous papers and projects at local, state and regional professional conferences. She was appointed by Governor Ted Kulongoski to two terms of the Oregon Board of Examiners of Speech Pathology and Audiology, the state’s licencing and consumer protection agency. Since her diagnosis in 2008, Carol has become active in the Parkinson’s Community as an advocate, an Ambassador for the Davis Phinney Foundation and support group facilitator for Parkinson's Resources of Oregon. She was appointed the regional patient representative for the Parkinson's Foundation’s Women with PD TALK study. In September of 2019 the Michael J Fox Foundation selected Carol to participate in the Parkinson’s Policy Forum in Washington DC. As an attendee at the World Parkinson Congress in 2016 in Portand, Oregon, Carol presnted a poster session examining the decision making process for patients considering deep brain stimulaiton. At the 2019 WPC in Kyoto, Japan she presented a poster on vision concerns of women with PD and lead small group discussions. Her book The Ribbon of Road Ahead has provided many speaking opportunities for Carol. In 2019 and early 2020 she visited 24 support groups in Washington, Idaho, Oregon and California to share her thoughts on living well with the disease. In addition, she has presented talks for The Center on Aging in San Francisco, Parkinson's Place in Las Vegas, Northwest Parkinson's Foundation in Richland WA and virtually through their HOPE online program. In late 2020 she rejuvenated her voice and narrated her book. It became available as an audio book in 2021. As part of this project she read stories over the airwaves on RadioParkies Australia with DJ Madonna and in Great Britain with DJ Johnny Parky. She and her husband Charlie have two adult sons. They live on a small hobby farm in eastern Oregon. Contact Information: Carol Clupny PO BOX 128, Hermiston, OR 97838 caclupny@gmail.com (541) 720-4256

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