Countdown to DBS Day 29

Countdown to DBS
Day 29
It’s perfectly normal for me to be messing with my cell phone…
But our on the Meseta in Northern Spain? Was I trying to act ok? Did I do a good job of convincing you all?
I got in the car and drove to the high school. I parked my car in the first available spot, quite a distance from the door, grabbed my stadium seat and made my way into the gym and up the bleachers to sit and watch the game. I was trying to act ok. I had trouble maneuvering the bleachers, my hands and legs did fantastic tremors the whole first half and I flagged down a friend to help me out of the building when the game was over as I was quite stiff and didn’t know how I would do in the crowd. Its perfectly normal for me to go to a game. Did I act ok? Did I do a good job of convincing you all?
Parkinson’s Disease has such a variety of symptoms, some very observable and many that you might not even notice. Today I “acted” my way through. Sometimes by doing “normal” activities I try to fool my way past Parkinson’s. Sometimes it works. Actually, it works all the time. The moral is revealed by a saying from the 70’s. “Keep on trucking”. Do what you can and keep doing it. By “acting” I am not faking it, I am doing it. Nobody or nothing can interrupt my performance.

I am thinking of all who may be suffering from sickness, have pain, stiffness, healing injuries or healing hearts. Act “ok”. Do what you can that comes closest to what you perceive as “normalcy.”
But “do”.

Carol Clupny's photo.

Published by Carol Clupny, author Ultreia Books

I am a middle aged woman with Parkinson's Disease. When I was first diagnosed I spent a lot of time researching the disease. Seeing a video of a man in the advanced stages of the disease attempting to get out of his chair and then "freezing" as he tried to walk across the room got me off my butt and moving. Great adventures on the Camino de Santiago and with TEAM Pedaling for Parkinson's across IOWA, as well as the day to day adventures of life have lead me to writing. My first novel, a memoir, will be published early 2019. It is called, you got it THE RIBBON OF ROAD AHEAD. Living with the degenerative neurological disease Parkinson's, ULTREIA is a word that guides me. I have chosen it as the name of my business ULTREIA BOOKS. It comes from Latin and old French and means "unfailing courage". In the old days, pilgrims would call "Ultreïa" to each other as encouragement "Go up, go further!" Nowadays we would say "You can do this thing". It takes courage to live with Parkinson's. May I face each day with unfailing courage.

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