After the voice evaluation…the rest of the day.

I am glad my husband is also a speech pathologist as he understood the measurements taken in the baseline evaluation.   

We left the Center for Health and Healing at OHSU and retraced our steps on the busy Banfield freeway until we found ourselves at Gateway.  We were to meet Patty at  the Applebee’s.  Patty was able to help me explain to  Charlie  how you can have a good friend although you have never met face to face.  Facebook provides us with pen pals and you get to exchange thoughts with them with immediate gratification instead if waiting weeks for a reply. Patty is a pilgrim.  Her hospitality in sharing   the warmth of her home, a pleasant conversation, some great pie and tea reflected her pilgrim experience ( you know where you give because you have received). Patty got me to the airport in plenty of time to get on the 6:55 pm SeaPort flight to Pendleton. Why did I fly home? Charlie left after lunch to complete his annual “meat delivery “. 
 
The flight was full.  SeaPort did not offer any of the 8 passengers a voucher for a free flight if they gave up their seat.  I would have gladly spent the night on Patty’s couch.  The plane was able to leave a few minutes early. But if it would have hung around it would have been there when the two pieces of checked baggage arrived to be loaded.  The plane was flying over The Dalles when the mistake was discovered.  The only other woman on the flight had her car keys in her luggage.  I never check baggage on SeaPort.  I just put my back pack and trekking poles in the black equipment chest in the back of the plane and I am good. 

The ride was smooth but very dark. No moon tonight.  I slept and dreamed I was the pilot. The landing was bumpier than the typical SeaPort experience.   My trusty car was right where I left it at the Pendleton airport.  The Ford does not know the way home like my Buicks did. After waiting for the car to warm up  I actually had to drive it home.

Exhausted.  I was sore. No, more than sore. I was in pain.  The strange Parkinsons pain. Tomorrow…gym workout , yoga.  I dreaded the thought.  Yet if I didn’t exercise the pain and stiffness would be worse.  Buck up Carol. Buck up. 

Published by Carol Clupny, author The Ribbon of Road Ahead: One Woman's Remarkable Journey with Parkinson's Disease

I am a middle aged woman with Parkinson's Disease. When I was first diagnosed I spent a lot of time researching the disease. Seeing a video of a man in the advanced stages of the disease attempting to get out of his chair and then "freezing" as he tried to walk across the room got me off my butt and moving. Great adventures on the Camino de Santiago and with TEAM Pedaling for Parkinson's across IOWA, as well as the day to day adventures of life have lead me to writing. My first novel, a memoir, was published early 2019. It is called, you got it THE RIBBON OF ROAD AHEAD. Living with the degenerative neurological disease Parkinson's, ULTREIA is a word that guides me. I have chosen it as the name of my business ULTREIA BOOKS. It comes from Latin and old French and means "unfailing courage". In the old days, pilgrims would call "Ultreïa" to each other as encouragement "Go up, go further!" Nowadays we would say "You can do this thing". It takes courage to live with Parkinson's. May I face each day with unfailing courage. Ab Here is more about me; I was living an active lifestyle riding horses, hiking, climbing and snow skiing when at age fifty she was diagnosed with Parkinsons. Retiring from her career as a speech-language pathologist she decided to “take to the road” to battle the disease. Her first steps, walking out her door to the mailbox, lead to trekking over 1000 miles of pilgrimage trails on the Camino de Santiago in France and Spain. A dusty bike discovered in the garage resulted in four rides on the Des Moines Register’s Annual Great Bike Ride Across Iowa with the Pedaling for Parkinsons Team. These adventures inspired her to write a memoir The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease. Carol blogs about her everyday life as a middle-aged woman in the mid-stages of Parkinson’s disease. Her honest, humorous and casual narrative style brings the reader to an intimate understanding of Carol’s resilience and acceptance. Her blog, sharing the name of her book ”The Ribbon of Road Ahead” can be found at www.ultreiablog.org After completing a Masters of Science in Speech Pathology from Eastern Washington University Carol received certification in School Leadership and Administration from Lewis and Clark College. She provided speech pathology services and was a program director for 32 years in the wide geographic expanse of eastern Oregon. Active in the Oregon Speech-Language and Hearing Association she received honors of the association and the presidential award for her work on recruitment and retention of speech and hearing professionals. Carol presented numerous papers and projects at local, state and regional professional conferences. She was appointed by Governor Ted Kulongoski to two terms of the Oregon Board of Examiners of Speech Pathology and Audiology, the state’s licencing and consumer protection agency. Since her diagnosis in 2008, Carol has become active in the Parkinson’s Community as an advocate, an Ambassador for the Davis Phinney Foundation and support group facilitator for Parkinson's Resources of Oregon. She was appointed the regional patient representative for the Parkinson's Foundation’s Women with PD TALK study. In September of 2019 the Michael J Fox Foundation selected Carol to participate in the Parkinson’s Policy Forum in Washington DC. As an attendee at the World Parkinson Congress in 2016 in Portand, Oregon, Carol presnted a poster session examining the decision making process for patients considering deep brain stimulaiton. At the 2019 WPC in Kyoto, Japan she presented a poster on vision concerns of women with PD and lead small group discussions. Her book The Ribbon of Road Ahead has provided many speaking opportunities for Carol. In 2019 and early 2020 she visited 24 support groups in Washington, Idaho, Oregon and California to share her thoughts on living well with the disease. In addition, she has presented talks for The Center on Aging in San Francisco, Parkinson's Place in Las Vegas, Northwest Parkinson's Foundation in Richland WA and virtually through their HOPE online program. In late 2020 she rejuvenated her voice and narrated her book. It became available as an audio book in 2021. As part of this project she read stories over the airwaves on RadioParkies Australia with DJ Madonna and in Great Britain with DJ Johnny Parky. She and her husband Charlie have two adult sons. They live on a small hobby farm in eastern Oregon. Contact Information: Carol Clupny PO BOX 128, Hermiston, OR 97838 caclupny@gmail.com (541) 720-4256

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