I put on my boots today updated Aug 23, 2015

I put on my boots today updated Aug 23, 2015

Reaching into my closet with my good arm while  the rest of my body was squeezed between the rocking chair and the closet door may not have been the greatest idea. I was stiff and hurting if not from the Parkinsons Disease which is progressing  through  my body, then the 30 minutes on the bicycle trainer at 80 rpm or higher.  I wanted my boots, my hiking boots. But I was getting myself stuck. I put them on once a few months ago then hid them away where I could not see them, under the  sweaters and blouses hung there in hopes I will be able to fit in them again.  The boots called to me, “Come wear me”. “Walk me over hills, through vineyards and on the hard pavement and cracked sidewalks of city streets.” The insides felt so familiar to my feet.  I needed to be reminded of that comfortable supportive feeling.  The smoothness of the custom orthotics took away the tingling in the bottoms of my feet.  So thats where they had been,those orthotics, hiding with my boots. These nice Keen boots that had protected my feet while  walking on the GR 65, the Chemin le Puy from Montcuq, France to Ronscevailes Spain in the spring of 2013.  I had very few blisters wearing these Keens.   Do they have another go round left in them?  Do I ?

It turns out that the old friends are too worn.  They helped my body get through all that mud on GR 65 in 2013 and the wonderful mud, as (facial mudd is supposed to do,) closed up the pores (in this case the breathability pores in the boot membranes). I need to move on to a new pair.  
Will the new blue made in USA Keens be the ones? Will they provide as good as  “understanding” as the old ones.  Will they reveal to me their heart and sole?  Will they say “Don’t tread on me” when someone with large feet gets too close. My boots need to commit to my feet.  


 Boots are such a personal thing…you can’t go out and buy them for another person.  The new blue Keens and I are dating.  If they dont work out in some training hikes they can be returned. 

My Update:The new blue Keens have a place in my life. Not sure when I will turn to them again.  Due to a number of reasons I now sweat like crazy.  My feet were coming out of those Keens  feeling like I just stepped out of a bucket of water.  So I revisited REI and found these HOKAs. They feel cushy and they allow my feet to breath so that the toe sock liners wick the moisture away to the next layer, my thin to medium weight hiking socks!   Hurray.  I am set!! WillHurray.  I am set!!

Published by Carol Clupny, author The Ribbon of Road Ahead: One Woman's Remarkable Journey with Parkinson's Disease

I am a middle aged woman with Parkinson's Disease. When I was first diagnosed I spent a lot of time researching the disease. Seeing a video of a man in the advanced stages of the disease attempting to get out of his chair and then "freezing" as he tried to walk across the room got me off my butt and moving. Great adventures on the Camino de Santiago and with TEAM Pedaling for Parkinson's across IOWA, as well as the day to day adventures of life have lead me to writing. My first novel, a memoir, was published early 2019. It is called, you got it THE RIBBON OF ROAD AHEAD. Living with the degenerative neurological disease Parkinson's, ULTREIA is a word that guides me. I have chosen it as the name of my business ULTREIA BOOKS. It comes from Latin and old French and means "unfailing courage". In the old days, pilgrims would call "Ultreïa" to each other as encouragement "Go up, go further!" Nowadays we would say "You can do this thing". It takes courage to live with Parkinson's. May I face each day with unfailing courage. Ab Here is more about me; I was living an active lifestyle riding horses, hiking, climbing and snow skiing when at age fifty she was diagnosed with Parkinsons. Retiring from her career as a speech-language pathologist she decided to “take to the road” to battle the disease. Her first steps, walking out her door to the mailbox, lead to trekking over 1000 miles of pilgrimage trails on the Camino de Santiago in France and Spain. A dusty bike discovered in the garage resulted in four rides on the Des Moines Register’s Annual Great Bike Ride Across Iowa with the Pedaling for Parkinsons Team. These adventures inspired her to write a memoir The Ribbon of Road Ahead: One Woman’s Remarkable Journey with Parkinson’s Disease. Carol blogs about her everyday life as a middle-aged woman in the mid-stages of Parkinson’s disease. Her honest, humorous and casual narrative style brings the reader to an intimate understanding of Carol’s resilience and acceptance. Her blog, sharing the name of her book ”The Ribbon of Road Ahead” can be found at www.ultreiablog.org After completing a Masters of Science in Speech Pathology from Eastern Washington University Carol received certification in School Leadership and Administration from Lewis and Clark College. She provided speech pathology services and was a program director for 32 years in the wide geographic expanse of eastern Oregon. Active in the Oregon Speech-Language and Hearing Association she received honors of the association and the presidential award for her work on recruitment and retention of speech and hearing professionals. Carol presented numerous papers and projects at local, state and regional professional conferences. She was appointed by Governor Ted Kulongoski to two terms of the Oregon Board of Examiners of Speech Pathology and Audiology, the state’s licencing and consumer protection agency. Since her diagnosis in 2008, Carol has become active in the Parkinson’s Community as an advocate, an Ambassador for the Davis Phinney Foundation and support group facilitator for Parkinson's Resources of Oregon. She was appointed the regional patient representative for the Parkinson's Foundation’s Women with PD TALK study. In September of 2019 the Michael J Fox Foundation selected Carol to participate in the Parkinson’s Policy Forum in Washington DC. As an attendee at the World Parkinson Congress in 2016 in Portand, Oregon, Carol presnted a poster session examining the decision making process for patients considering deep brain stimulaiton. At the 2019 WPC in Kyoto, Japan she presented a poster on vision concerns of women with PD and lead small group discussions. Her book The Ribbon of Road Ahead has provided many speaking opportunities for Carol. In 2019 and early 2020 she visited 24 support groups in Washington, Idaho, Oregon and California to share her thoughts on living well with the disease. In addition, she has presented talks for The Center on Aging in San Francisco, Parkinson's Place in Las Vegas, Northwest Parkinson's Foundation in Richland WA and virtually through their HOPE online program. In late 2020 she rejuvenated her voice and narrated her book. It became available as an audio book in 2021. As part of this project she read stories over the airwaves on RadioParkies Australia with DJ Madonna and in Great Britain with DJ Johnny Parky. She and her husband Charlie have two adult sons. They live on a small hobby farm in eastern Oregon. Contact Information: Carol Clupny PO BOX 128, Hermiston, OR 97838 caclupny@gmail.com (541) 720-4256

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