I am a middle aged woman with Parkinson’s Disease. When I was first diagnosed I spent a lot of time researching the disease. Seeing a video of a man in the advanced stages of the disease attempting to get out of his chair and then “freezing” as he tried to walk across the room got me off my butt and moving.

I decided to do everything I could to combat the progression of this neurological disorder.  Shooting baskets and playing guitar were some activities from my youth that I returned to.  I added tai chi, massage, acupuncture, bike riding, and kayaking to the list of traditional and non-traditional treatments for Parkinsons.  I took my medicine and suffered the side effects which made me feel like I was going crazy.  Great adventures on the Camino de Santiago and with TEAM Pedaling for Parkinson’s and Davis Phinney Foundation while cycling across IOWA, as well as the day to day adventures of life have lead me to write. My first novel, a memoir, will be published early 2019. It is called, THE RIBBON OF ROAD AHEAD.

Living with the degenerative neurological disease, Parkinson’s, ULTREIA has become a word that guides me. I have chosen it as the name of my business ULTREIA BOOKS. It comes from Latin and old French and means “unfailing courage”. In the old days, pilgrims would call “Ultreïa” to each other as encouragement “Go up, go further!” Nowadays we would say “You can do this thing”. It takes courage to live with Parkinson’s. May I face each day with unfailing courage.

3 thoughts on “Home

  1. Carol. Thank you. Wow, amazing work on your book.
    Thank you for sharing your story, your journey.
    I have admired you in your work, and even more now in the way you have been tackling your Parkinson’s.

    I know many who have a chronic illness, my mom being one of them, and see how all of you with your ups and downs, manage to be an example of perseverance, strength and faith in God.
    You are an example to so many.

    God bless you.

  2. What a fantastic book full of adventure and so inspirational! Carol is a true warrior, fighting back against Parkinson’s with true grit, humor and grace. A true testament of what a “never give up” attitude can achieve. Reading her story made me laugh, cry and want to cheer at times. As a fellow person with Parkinson’s, I am in awe of her strength and positivity. A must read for anyone needing a little encouragement and a reminder of what we are capable of when we dig deep!!

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